Head of Patient Experience – Strategy

argenx

. Lead and evolve STEP, the Global Patient Experience Community .

Posted 10/16/2026full-timeRemote • United StatesLead💰 $228,000 - $313,500 per yearWebsite

Core Competencies

Role fit

Core Competencies

Use this summary to align your resume positioning with the role.

Demonstrates extensive experience in patient experience and engagement strategies, with a strong focus on integrating patient perspectives into healthcare operations and decision-making. Proven ability to build cross-functional relationships and influence stakeholders to drive meaningful change in patient-centered outcomes.

Highest-signal resume keywords

Patient Experience StrategyPatient EngagementCross-Functional LeadershipStakeholder EngagementBiotech Industry Expertise

ATS Keywords

Tailor your resume

Applicant Tracking System Keywords

Tip: use these terms in your resume and cover letter to boost ATS matches.

Hard Skills

Patient AdvocacyHealthcare StrategyClinical DevelopmentGovernance ModelsPatient-Centered Drug DevelopmentStudy Design InfluenceEnrollment StrategiesData SynthesisImpact MeasurementGlobal Patient Engagement

Soft Skills

Exceptional CommunicationRelationship BuildingFacilitation SkillsStorytelling SkillsInfluencing Without Authority

Industry Keywords

Rare DiseasePatient JourneyCorporate AffairsMedical AffairsClinical Trial Experience

About the role

Key responsibilities & impact

Lead and evolve STEP, the Global Patient Experience Community
Build a capability that brings structure to patient experience across argenx and translates patient insight into meaningful action
Bring together expertise across functions, geographies, and lifecycle stages to align shared priorities and drive action
Create governance, focus, and ways of working for STEP
Define and champion a vision for patient experience that positions patients as partners in innovation, decision-making, and impact
Build strategies, capabilities, and approaches that integrate patient perspectives into how argenx operates and grows
Identify opportunities for patient insight to influence decisions, experiences, and outcomes across the lifecycle
Connect insights across teams and geographies and translate them into action and meaningful change
Partner with Corporate Affairs leaders on stakeholder experience
Build a consistent approach to capturing, synthesizing, and activating patient insights
Integrate patient perspectives into development, clinical operations, commercial strategy, and corporate affairs decisions
Create forums, tools, and mechanisms that make patient insight accessible and actionable
Define measures of patient influence and impact
Shape global patient engagement grounded in trust, transparency, and long-term partnership
Build relationships with patient leaders, advocacy organizations, and rare disease communities worldwide
Partner with Policy and Government Relations on initiatives supporting broader system change
Strengthen patient perspectives in study design, recruitment, enrollment, and clinical trial experience
Improve enrollment and reduce barriers to participation through scalable approaches
Inform argenx communications, stakeholder engagement, and reputation-building efforts
Establish measures demonstrating patient experience impact on decisions, outcomes, and ways of working
Build accountability for patient-centered outcomes across STEP priorities and initiatives

Requirements

What you’ll need

15+ years of experience in patient experience, patient engagement, patient advocacy, healthcare strategy, medical affairs, clinical development, corporate affairs, or related disciplines
Deep understanding of the biotech industry and the patient journey, ideally with experience in rare disease or other complex healthcare environments
Demonstrated success defining and leading global patient experience or patient engagement strategies across functions, geographies, and stages of the product lifecycle
Proven ability to translate patient perspectives and insights into meaningful business, development, clinical, commercial, and organizational decisions
Experience building and leading cross-functional communities, governance models, or enterprise-wide capabilities that turn strategy into measurable action
Established credibility and experience partnering with patient leaders, advocacy organizations, and patient communities to build trusted, transparent, and long-term relationships
Strong understanding of patient-centered drug development, including opportunities to influence study design, recruitment, enrollment, and the clinical trial experience
Experience partnering with senior leaders and serving as a strategic advisor on patient experience, stakeholder engagement, and organizational priorities
Demonstrated ability to influence across teams without direct authority, align diverse stakeholders, and create momentum around shared priorities
Exceptional communication, facilitation, relationship-building, and storytelling skills
Ability to thrive in a fast-paced, global, and evolving environment with a builder mindset, strong judgment, and bias for action

Benefits

Comp & perks

Short-term and long-term incentive programs
Comprehensive benefits package
Retirement savings plans
Health benefits
Equal consideration for employment without discrimination
Reasonable accommodation in completing the application, interviewing, or participating in the candidate selection process