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About the role
Key responsibilities & impact- Track and manage compliance across a portfolio of 155+ global data licensing collaborations involving genetic and associated health data
- Monitor ongoing compliance, conduct risk assessment, and oversee remediation
- Oversee development and operationalization of RGC data governance policies, procedures, consent frameworks, and data use agreements
- Collaborate with the Privacy Office on privacy impact assessments and other regulatory requirements
- Lead, mentor, and develop a team of data governance and compliance professionals
- Foster accountability, transparency, and continuous learning
- Collaborate with Legal, the Privacy Office, IT Security, Research, and Business Development
- Embed privacy-by-design into data collaboration workflows and new initiatives
- Oversee data governance, collaboration finance, strategic vendor contracting, and Confidential Disclosure Agreement processing
- Track and monitor research, business, and finance deliverables
- Maintain compliance and report portfolio status to leadership
- Oversee several headcount directly and indirectly
Requirements
What you’ll need- Master's degree in Genetics, Business, Legal, Bioethics, Life Sciences, or a related field; OR relevant degree with experience in contract compliance and sponsored research
- An equivalent combination of advanced education and 15+ years of directly relevant experience may be considered
- Minimum 10 years of progressive experience in contracting, alliance/portfolio management or compliance
- At least 5 years focused on genetic or health data in a research, biopharmaceutical, or biotech setting
- Strong knowledge of genomic data governance frameworks
- Knowledge of international privacy laws, including the NIH Genomic Data Sharing Policy and GA4GH standards
- Exceptional written and verbal communication skills
- Ability to translate complex regulatory requirements for scientific and executive audiences
- Proven leadership ability with experience building and managing high-performing compliance teams
Benefits
Comp & perks- Annual bonuses or other incentive plans
- Equity awards
- Pension or retirement benefits
- 401(k) company match
- Health and wellness programs
- Fitness centers
- Medical, dental, vision, life and disability insurance benefits
- Paid time off
- Family support benefits
- Reasonable accommodation for applicants with known disabilities or chronic illnesses