Community Advocacy Specialist

Travere Therapeutics

. Cultivate and steward relationships with patient advocacy organizations, community-based organizations, patients, families, caregivers, and other community stakeholders .

Posted 11/11/2026full-timeRemote • Massachusetts • United StatesMid-LevelSenior💰 $85,000 - $105,000 per yearWebsite

Core Competencies

Role fit

Core Competencies

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Demonstrates expertise in patient advocacy and community engagement, with a strong ability to cultivate relationships and coordinate educational programs. Proficient in project management, communication, and understanding the rare kidney disease landscape.

Highest-signal resume keywords

Patient Advocacy ExperienceCommunity EngagementProject ManagementPublic SpeakingBilingual Proficiency

ATS Keywords

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Applicant Tracking System Keywords

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Hard Skills

Project CoordinationRelationship ManagementData SynthesisProgram MetricsCommunity Needs AssessmentDisease Education CommunicationBudget ManagementEvent PlanningStakeholder EngagementListening Activities

Soft Skills

Strong Listening SkillsRelationship-BuildingWritten CommunicationInitiativeAttention to Detail

Tools & Technologies

Microsoft OfficeProject Tracking Systems

Industry Keywords

Rare Kidney DiseasePatient OrganizationsHealthcare ProfessionalsCommunity-Based OrganizationsCulturally Responsive EngagementGrassroots OutreachNonprofit ManagementPatient EducationAdvocacy LandscapeCompliance Principles

About the role

Key responsibilities & impact

Cultivate and steward relationships with patient advocacy organizations, community-based organizations, patients, families, caregivers, and other community stakeholders
Serve as a day-to-day contact and follow through on agreed actions
Identify opportunities to broaden engagement with local organizations and expand reach to less-connected populations
Represent Travere at patient meetings, educational programs, conferences, and community events
Interact with healthcare professionals and community leaders to understand local needs and support approved community education and engagement activities
Prioritize routine outreach, respond to partner needs, recommend next steps, and escalate sensitive matters or issues requiring guidance
Gather insights through field interactions and approved listening activities
Document and synthesize observations into concise summaries and recommend opportunities for strategy, education, and future programs
Share insights with Community Advocacy leadership and Patient Advocacy colleagues
Maintain working knowledge of the rare kidney disease advocacy landscape and evolving patient education needs
Coordinate local and virtual programs, listening sessions, educational events, and grassroots activities from planning through follow-up
Support RKD and Me programming and patient and caregiver ambassador activities
Coordinate venues, invitations, registration, vendors, travel, accessibility, materials, and on-site needs
Gather participant feedback and assess attendance, reach, participant experience, and lessons learned
Maintain relationship records, engagement histories, commitments, project plans, budgets, expenses, and program metrics
Prepare meeting briefs, presentations, outreach communications, and program summaries
Coordinate required internal reviews and use approved materials
Collaborate with therapeutic advocacy leads, Rare Kidney Educators, Corporate Communications, Patient Marketing, Medical Affairs, and other colleagues
Operate within approved budgets, plans, and decision authority; protect patient privacy and preserve patient-organization independence

Requirements

What you’ll need

Bachelor’s degree in public health, communications, healthcare, nonprofit management, or a related discipline, or an equivalent combination of education and relevant experience
At least four years of experience in patient advocacy, including community engagement, patient or caregiver programs, or external stakeholder relationships
Experience cultivating relationships with patients, caregivers, advocacy organizations, or community partners
Experience independently managing assigned projects or programs
Working knowledge of the external rare kidney disease landscape, including patient organizations, community needs, and relevant scientific and treatment advancements
Experience interacting with healthcare professionals and communicating effectively with varied external audiences
Experience with public speaking, presentations, or group facilitation
Ability to communicate clearly and adapt to audience needs
Preferred: experience in rare kidney disease or another rare disease community, particularly in a pharmaceutical, biotechnology, healthcare, or nonprofit setting
Preferred: experience with ambassador programs, community education, grassroots outreach, or culturally responsive engagement
Bilingual proficiency, including Spanish, is a plus
Sound independent judgment, initiative, and accountability
Strong listening, relationship-building, written communication, and public speaking skills
Ability to translate community observations into clear insights and practical recommendations
Strong organization, project coordination, and attention to detail
Proficiency with Microsoft Office and relationship or project tracking systems
Ability to understand and accurately communicate approved disease education within role boundaries
Familiarity with privacy, compliance, and ethical principles affecting patient advocacy
Ability to travel up to approximately 50 percent domestically, including occasional evening and weekend commitments

Benefits

Comp & perks

Premium health, financial, work-life and well-being offerings for eligible employees and dependents
Wellness and employee support programs
Life insurance
Disability benefits
Retirement plans with employer match
Generous paid time off
Short-term incentive compensation
Long-term incentive compensation in company stock