Head of Rare Disease Patient Engagement

Biogen

. Lead the Rare Disease Patient Engagement function, overseeing patient experience, specialty pharmacy operations, hub operations, and patient support programs .

Posted 10/7/2026full-timeResearch Triangle Park • North Carolina • United StatesLead💰 $206,000 - $283,250 per yearWebsite

Core Competencies

Role fit

Core Competencies

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Demonstrates expertise in leading patient engagement strategies, optimizing specialty pharmacy operations, and managing patient support programs. Proven ability to influence stakeholders and drive alignment in complex, matrixed environments while ensuring compliance and operational excellence.

Highest-signal resume keywords

Patient Engagement StrategySpecialty Pharmacy OperationsPatient Support Program ManagementCross-Functional LeadershipData-Driven Decision Making

ATS Keywords

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Applicant Tracking System Keywords

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Hard Skills

Patient Access ProgramsHub OperationsVendor ManagementPerformance MetricsBudget ManagementProgram OptimizationReimbursement ProcessesPatient Journey MappingOperational ImprovementFinancial Management

Soft Skills

Exceptional CommunicationRelationship BuildingStrategic ThinkingInfluencing Without AuthorityAccountability

Tools & Technologies

Patient Services Technology PlatformsAnalytics ToolsInventory Management Systems

Industry Keywords

Pharmaceutical IndustryBiotechnologyHealthcare ServicesSpecialty PharmacyRare Disease

About the role

Key responsibilities & impact

Lead the Rare Disease Patient Engagement function, overseeing patient experience, specialty pharmacy operations, hub operations, and patient support programs
Develop and execute strategies that improve patient access, therapy initiation, adherence, and long-term treatment outcomes
Lead specialty pharmacy partnerships and patient support services, including adherence, lab monitoring, and patient assistance programs
Partner with Commercial, Market Access, Medical, Digital, Analytics, Legal, and Compliance teams to deliver integrated patient engagement solutions
Manage external vendors and service partners to ensure operational excellence, compliance, and high-quality patient experiences
Establish and monitor key performance indicators, including time-to-first-fill, adherence, retention, and overall program effectiveness
Drive continuous improvement through data, patient insights, technology, and innovative support models
Provide strategic leadership in a complex matrix environment, influencing stakeholders and communicating recommendations to senior leadership

Requirements

What you’ll need

Bachelor's degree required; MBA or advanced degree preferred
12+ years of experience in the pharmaceutical, biotechnology, healthcare services, or specialty pharmacy industry
10+ years of experience leading patient support services, patient access programs, specialty pharmacy operations, hub services, or related commercial functions
Experience supporting rare disease, specialty therapeutics, or other high-touch patient populations
Strong understanding of complex patient journeys, reimbursement, access, affordability, specialty pharmacy distribution, and patient support operations
Proven experience designing, implementing, and optimizing patient support programs for both launch and established products
Expertise in specialty pharmacy strategy, hub operations, vendor management, service delivery, and patient engagement program management
Demonstrated success leading cross-functional initiatives within highly matrixed organizations
Strong business acumen, including experience managing budgets, program investments, and performance metrics
Proven ability to influence without direct authority and drive alignment across diverse stakeholders
Strong executive presence with exceptional communication and relationship-building skills
Strategic thinker with the ability to translate data and insights into actionable business recommendations
Demonstrated accountability, sound judgment, and effectiveness in complex, evolving environments
Experience leading organizational change, transformation initiatives, and operational improvements
Experience partnering with customer experience, digital transformation, and analytics teams preferred
Knowledge of specialty distribution networks, patient services technology platforms, and inventory management
Financial management and P&L experience preferred
Willingness to travel as business needs require
Must be authorized to work in the United States (Biogen is an E-Verify Employer in the United States)

Benefits

Comp & perks

Regular employees are eligible for short-term and long-term incentives, including cash bonus and equity incentive opportunities
Medical, Dental, Vision, & Life insurances
Fitness & Wellness programs including a fitness reimbursement
Short- and Long-Term Disability insurance
A minimum of 15 days of paid vacation and an additional end-of-year shutdown time off (Dec 26-Dec 31)
Up to 12 company paid holidays + 3 paid days off for Personal Significance
80 hours of sick time per calendar year
Paid Maternity and Parental Leave benefit
401(k) program participation with company matched contributions
Employee stock purchase plan
Tuition reimbursement of up to $10,000 per calendar year
Employee Resource Groups participation