Director, Patient Advocacy – Engagement

CultureHQ

. Establish Cogent as a strong partner to the global Systemic Mastocytosis patient advocacy community .

Posted 9/21/2026full-timeRemote • United StatesLead💰 $220,000 - $250,000 per yearWebsite

Core Competencies

Role fit

Core Competencies

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Demonstrates expertise in patient advocacy and engagement, with a strong focus on developing and executing strategic plans, building partnerships, and navigating regulatory compliance. Proven ability to lead educational initiatives and collaborate across multidisciplinary teams to enhance patient awareness and access to care.

Highest-signal resume keywords

Patient Advocacy ExperienceStrategic Partnership DevelopmentRegulatory Compliance NavigationPatient Education Initiative ExecutionCross-Functional Collaboration

ATS Keywords

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Applicant Tracking System Keywords

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Hard Skills

Patient EngagementCommercial Product LaunchDisease Education DevelopmentMetrics DevelopmentBudget Management

Soft Skills

Excellent CommunicationOrganizational SkillsInterpersonal SkillsDecision-Making AbilityCreative Problem Solving

Certifications & Qualifications

Bachelor's Degree

Industry Keywords

Pharmaceutical IndustryRare DiseasesHematologyAllergy/ImmunologyOncology

About the role

Key responsibilities & impact

Establish Cogent as a strong partner to the global Systemic Mastocytosis patient advocacy community
Build strategic long-term partnerships, strengthen existing collaborations, and identify new groups for engagement
Develop, lead, and execute the annual Patient Advocacy & Engagement strategic plan, including commercial launches
Lead external patient advocacy engagement strategy and execute strategic partnerships with patient advocacy groups and medical associations
Develop and execute patient-facing educational initiatives focused on program awareness, disease education, and access to care
Support global, national, and local patient advocacy organizations through relationship building, networking, capacity building, and best-practice sharing
Conduct virtual and in-person patient advisory boards and champion patient insights
Collaborate with Marketing, Market Access, Patient Services, Medical Affairs, Clinical Development, Patient Recruitment, Legal, Regulatory, and Research teams
Oversee vendors, budgets, timelines, and deliverables for advocacy and engagement initiatives
Coordinate Cogent’s presence at patient meetings and awareness days/months
Represent Cogent at U.S. and global patient advocacy meetings, events, and scientific congresses
Develop metrics to measure advocacy initiative success
Innovate and elevate Cogent’s patient advocacy and engagement approach
Maintain cross-functional coordination, strategic planning, budget adherence, compliance, customer service, and creativity

Requirements

What you’ll need

Bachelor’s degree is required
8-12+ years in patient advocacy, patient engagement, patient marketing, patient services, or related pharmaceutical industry experience required
Deep understanding of commercialization and R&D, including successful commercial product launches
Demonstrated success navigating regulatory and legal compliance related to advocacy efforts
Experience in rare diseases, hematology, allergy/immunology, or oncology preferred
Experience developing and executing patient-facing disease education and awareness resources and initiatives
Experience in patient digital health initiatives and campaigns is a plus
Excellent organizational, planning, and interpersonal skills
Strong executive presence and communication skills
Ability to make sound decisions and communicate recommendations using decision-support data and regulatory considerations
Experience working with all levels of management and consulting with key business stakeholders
Ability to work individually, within multidisciplinary teams, and with external partners and vendors
Ability to travel to key U.S. and global congresses and patient events as needed, up to 30%
Role can be U.S. remote or located in Waltham, MA or Boulder, CO

Benefits

Comp & perks

Competitive salary
Target bonus of 20%
Ongoing stock awards
100% employer-paid medical, dental, and vision premiums for employees and families
Up to 75% of in-network deductibles funded
401(k) match with immediate vesting
Generous paid time off
12 weeks of fully paid parental leave
Paid family and medical leave for all employees regardless of location
Company-paid short-term disability coverage for up to 20 weeks
Wellness programs
Tuition reimbursement
Inclusive family-forming support