Patient Engagement Liaison – Clinical

PTC Therapeutics, Inc.

. Engage with the rare disease community, including patient advocacy organizations, to understand the rare experience and incorporate insights throughout PTC Therapeutics .

Posted 10/2/2026full-timeRemote • United StatesMid-LevelSenior💰 $122,000 - $143,500 per yearWebsite

Core Competencies

Role fit

Core Competencies

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Demonstrates expertise in building relationships with the rare disease community, including patient advocacy organizations, while ensuring compliance with healthcare regulations. Proficient in developing educational programs and collaborating cross-functionally to advocate for access to care and therapies.

Highest-signal resume keywords

Bachelor’s Degree In Clinical Or Scientific Discipline5 Years Of Experience In Pharmaceutical Or BiotechnologyExperience Supporting People With Rare DiseasesExcellent Verbal And Written Communication SkillsProficiency With Microsoft Office Suite And Zoom

ATS Keywords

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Applicant Tracking System Keywords

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Hard Skills

Understanding Of Healthcare And Specialty PharmacyAnalytical And Critical-Thinking SkillsData Entry Into CRMPlanning And Organization SkillsAbility To Lift/Carry Up To 50 Pounds

Soft Skills

Demonstrated Leadership In Cross-Functional TeamsAbility To Work Independently And CollaborativelyExcellent Presentation SkillsAbility To Adapt To Changing Priorities

Tools & Technologies

Microsoft Office SuiteZoom

Industry Keywords

Patient Advocacy OrganizationsRare Disease CommunityCompliance RulesPharmaceutical IndustryBiotechnology Industry

About the role

Key responsibilities & impact

Engage with the rare disease community, including patient advocacy organizations, to understand the rare experience and incorporate insights throughout PTC Therapeutics
Collaborate with internal PTC teams to identify, educate, build, and leverage relationships with people living with rare diseases, caregivers, and Patient Advocacy Organizations
Assist communities with resources to help remove access barriers and gain coverage for marketed products, when appropriate
Build patient advocacy and community relationships for currently marketed product disease states and products in development, consistent with applicable regulations
Work cross-functionally with medical, communications, commercial, legal, and compliance colleagues to follow country-specific guidelines, standards, and regulations
Connect families to Patient Advocacy Organizations and resources
Develop, plan, and execute educational programs for people living with rare diseases and their caregivers
Support Patient Advocacy Organizations through shared interests in education and programs
Work with the rare disease community to advocate for access to care and therapies

Requirements

What you’ll need

Bachelor’s degree in a related clinical or scientific discipline, including nursing, public health, or social work
5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field
Experience supporting people with rare diseases, their caregivers, and advocacy organizations
Understanding of healthcare, specialty pharmacy, pharma, and biotech industry
Maintenance of all compliance rules and confidentiality
Demonstrated leadership working as part of cross-functional teams
History of building and maintaining strong internal and external relationships
Proficiency with Microsoft Office suite and Zoom
Excellent verbal and written communication and presentation skills, including explaining technical information to non-technical audiences
Ability to work independently and collaboratively in a fast-paced matrixed team environment
Analytical and critical-thinking skills; ability to adapt to changing priorities and deadlines
Excellent planning, organization, and time-management skills
Ability to enter data quickly, confidentially, and accurately into CRM
Up to 75% domestic travel, including overnights, weekends, and evening responsibilities as needed
Potential for international travel as needed
Valid driver’s license and clean driving record
Ability to travel extensively throughout the assigned territory, country, and potentially globally
Ability to lift/carry up to 50 pounds